High quality (AHRQ) (2010) has defined a patient registry as an organized system that makes use of observational research strategies to collect uniform information (medical and different) to judge specified outcomes for a population defined by a selected disease, situation, or exposure and that serves predetermined scientific, clinical or coverage objective(s).” Many population surveys rely exclusively on respondent self-report back to questionnaire items, which is maybe most valid for measuring many well being behaviors, psychological health conditions, perceived obstacles to accessing well being providers, and reporting of signs.
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